UK Community Advisory Board (UK-CAB)
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    • UK-CAB 36 – Making the most of your GP

    11/10/2010 Alison Neathey
    Off
    Meetings

    Friday 22 October 2010

    At the MRC Clinical Trials Unit, 222 Euston Road, London, NW1

    Programme

    09:30–10:00 Registration, refreshments and expenses
    10:00–10:05 Welcome and UK-CAB updates
    10:05–10.30 Pre-Meeting for ViiV Healthcare – Brian West
    10:30–11:15 General practice and HIV/AIDS – Dr Surinder Singh, Senior Lecturer in GP, Research Dept of Primary Care and Population Health, University College, London
    11:15 –11:30 Break
    11:30–12:00 Accessing GP care: the patient’s perspective – Angelina Namiba, Project Manager, Positively UK
    12:00–12:45 Outcomes in HIV – Hilary Curtis, BHIVA Clinical Audit Co-ordinator, speaking in personal capacity
    12:45–14:00 Lunch
    14:00–15:30 Company meeting: ViiV Healthcare
    15.30–15.35 Break
    15:35–16:30 Conference feedback: IAS Vienna 2010, BHIVA – Paul Clift/Silvia Petretti
    16.30–16.45 AOB
    16.45 Close

    Background Reading

    GP Access:

    Managing HIV Positive Individuals in Primary Care
    http://www.patient.co.uk/printer.asp?doc=40024602

    Living with HIV and GPs
    http://www.tht.org.uk/howwecanhelpyou/livingwithhiv/healthcare/privacyandyourgp/

    NHS Choices:

    The new government plans to bring about an ‘NHS information revolution’, giving people access to data about hospitals and health services in the hope that it will help us choose where to go for treatment, and that this will drive up the standard of care. The government also say that they want the information they provide to be ‘meaningful’ to patients. So what information about HIV services would be useful?

    Most of the information provided will be about the ‘outcomes’ of healthcare (e.g. how many people got better after being ill). Collecting reliable information about outcomes is not straightforward and Hilary will explain some of the challenges:

    • Measuring process or measuring outcomes: pros and cons. Existing and proposed indicators in HIV.
    • Why outcomes vary: random fluctuation, reporting bias, measurement error, case-mix or quality of care?
    • Management by outcomes: if you can’t measure it, does it matter? Perverse incentives?

    Article in the Guardian newspaper:
    http://www.guardian.co.uk/uk/2010/jul/12/andrew-lansley-nhs-information-revolution

    Department of Health documents:
    http://www.dh.gov.uk/en/Consultations/Liveconsultations/DH_117583

    Vienna feedback: non-technical summary by Simon Collins, i-Base
    http://i-base.info/home/ias-2010-report-non-technical-summaries/

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