Treatment activism: UK-CAB skills and training course 2013
Treatment activism: UK-CAB skills and training course
2-6 October 2013
Harben House, Milton Keynes
Training programme
Download programme as PDF
Venue
Presentations from UK-CAB skills and training course
Background:
Since the first meetings in 2002 the UK-CAB has developed to a network with more than 575 members from over 120 organisations.
UK-CAB members are now formally involved in all activities run by BHIVA including conference programmes and national treatment guidelines. The CAB meets with all research-based companies and has developed connections with national and internationally recognised experts who present trainings at our meetings.
CAB members have a wide diversity and depth of individual experiences. There are also very different levels of involvement in the range of activities that the CAB is involved in. Some people use the forums to stay connected and up-to-date and others come forward for higher profile activities.
As an activist network and at a time when the NHS is undergoing great change it is important that both new and experienced activists have the opportunity to grow and develop their skills, and to be supported if they want to become more active.
In line with developing HIV activism in the UK, the CAB is therefore organizing a 4-day intensive training retreat in October. This first course will be for 10-12 CAB members.
Aim of the training:
The primary aim of the workshop is to help individual CAB members to improve their skills and confidence. The outcome will be for people who attend the course to become more engaged and active in UK-CAB activities over the following year.
Outcomes of the training:
- To develop a pool of advocates with stronger advocacy skills, confidence and enthusiasm to go out and get involved in line with CAB roles as patient reps on committees, studies, BHIVA guidelines, etc.
- Advocates with greater confidence and understanding of HIV treatment, research and science.
- Advocates who represent from patient forums from their treatment centres.
- Advocates who take up active roles in UK-CAB working groups:
- UKCAB email forum discussion
- UKCAB speaker group
- Advocacy resources
- BHIVA guidelines and study representation
- Patient forum development
- Media/PR
Criteria for attending the course:
- Have basic literacy levels and willing to learn new skills; this training will be the foundation.
- Keen, willing and committed with a desire to learn about HIV and science through writing, discussions, reading studies and scientific journals.
- An opportunity to confront issues you are not confident at; breaking down the barriers.
- Open about HIV status and active and have a dynamic and interest in changing things.
- Commit to take on posts on CAB roles such as BHIVA posts, CAB steering group, clinical trials steering groups, Data and Safety Monitoring Board (DSMB), etc.
Applicants will be asked to do some preliminary work to assess their skills level.
The training will include:
- Understanding trial design and research.
- Science in research meaning of evidence-base science.
- Treatment literacy – how to read a scientific paper.
- Virology and immunology.
- Personal development – assertiveness, interpersonal skills, how to apply these in daily life.
- ABC of HIV – inequalities in social settings, NHS structures etc.
- ABC of good communication – public speaking (practical exercise) to be able to speak at conferences to represent patient views.
Application process:
Applicants will be informed in good time to plan to be away for that time.
Please note that places are limited and all who apply may not be able to attend the course. A panel will decide the outcomes based on applicant’s suitability to the criteria.
Download the application form here.
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Training programme
Wednesday 2 October 2013
Arrival from 2pm
| Time | Subject | Presenter |
| Pre-meeting: informal meetings Facilitator: Damian Kelly |
||
| 18.15-19.00 | Registration | Memory |
| 19.00-21.00 | Welcome and introductions | All |
| Setting and understanding ground rules | All | |
| Expectations from the training | All | |
| Learning methods – how to learn | All | |
| Open Q & A | ||
| 21.00 | Dinner | |
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Day 1: Thursday 3 October 2013
|
Time |
Subject |
Presenter |
| Trials and researchFacilitator: Silvia Petretti | ||
| 09.00-11.00 | Science & research – why we need evidence and not just expert opinion | Simon Collins |
| 11.00-11.30 | Break | |
| 11.30-13.00 | Understanding trial design and research | Simon Collins |
| 13.00-14.00 | LUNCH | |
| ABC of good communication – Key skill development areas – group workFacilitator: tbc | ||
| 14.00-15.30 | Public speaking | Silvia Petretti |
| 15.00-16.30 | Dealing with people in authority and running an effective meeting | Elisabeth Crafer |
| 16.30-17.00 | Writing – introduction to summarizing studies | Simon Collins |
| 17.00-19.00 | Break and rest | |
| 19.00 | DinnerEvening session: Film: We were
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Discussion with Ben Collins |
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Day 2: Friday 4 October
| Time |
Subject |
Presenter |
| Basic statistics training Facilitator/Presenters: Caroline Sabin and Colette Smith | ||
| 09.00-13.00 | Defining a research questionDifferent study typesp-values and confidence intervals | Caroline Sabin and Colette Smith |
| 13.00-14.00 | LUNCH | |
| 14.00-17.00 | Treatment literacy – how to read a scientific paper | Caroline Sabin and Colette Smith |
| 17.00-18.00 | Break and rest | |
| 18.00-19.30 | Poetry for activism | Godwyns Onwuchekwa |
| 19.30 | Depart for dinnerDinner: The Grange Restaurant, 132 Dunthorne Way, Grange Farm, Milton Keynes, MK8 0LW | |
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Day 3: Saturday 5 October
|
Time |
Subject |
Presenter |
| Treatment and care in the NHS Facilitator: tbc | ||
| 09.00-10.30 | Introduction to ARVs and treatment guidelinesExperience as community rep | Garry Brough |
| 10.30 -10.45 | BREAK | |
| 10.45-13.00 | Basics of virology and immunologyBeing an HIV doctor and working in the NHS.How advocates and doctors can work together | Dr Laura Waters |
| 13.00-14.00 | LUNCH | |
| Effective representation How to be effective in working groups: representing the community | ||
| 14.00-16.00 | BHIVA executive committee | Garry Brough |
| CAB Steering Group | Silvia Petretti | |
| Clinical trials steering group | tbc | |
| Non-RCT studies (e.g POPPY study) | Roger Pebody | |
| Data and Safety and Monitoring Board (DSMB) | Simon Collins | |
| 16.00-17.00 | Community and pharma – open discussion | Lead – tbc |
| 17.00-18.00 | Break and rest | |
| 19.00 | DinnerFilm: ACT UP film How To Survive a Plague
|
Discussion with Simon Watney |
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Day 4: Sunday 6 October
|
Time |
Subject |
Presenter |
| Mapping: where do we take these skills? Facilitator: tbc |
||
|
09.00-11.00 |
How the CAB works | SG members |
| Opportunities within the CAB – representation posts | SG members | |
| Attending to a conference: what to look for | SG members | |
| NHS structures | Mark Platt | |
|
11.00-11.30 |
BREAK | |
|
11.30-13.00 |
Presentations from each member on what they learnt, feedback from participants | Facilitator |
| AOB | Facilitator | |
| Evaluation and close | Facilitator | |
|
13.00 |
LUNCH Departure after lunch |
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