UK Community Advisory Board (UK-CAB)

UK-CAB 63: Quality of life, health and wellbeing 

Friday 14 July 2017


09.20-09.40 Arrival, tea and refreshments
09.40-10.00 Welcome and introductions, UK-CAB updatesCompany pre-meeting
10.00-11.30 Company meeting: ViiV Healthcare
11.30-11.45 BREAK
11.45-12.30 Health and wellbeing outcomes in PLWH with and without depression– Davide De Francesco, UCL (POPPY study)
12.30-14.00 LUNCH


Invited speakers:

  1. Increased physical activity levels amongst HIV positive individuals – Declan Duncan, YMCA
  2. National standards of HIV Peer Support – Silvia Petretti, Positively UK
15.30-15.45 BREAK


ViiV Healthcare feedback
King’s Fund conference feedback – Garry Brough
NHIVNA conference feedback – Robert James/Longret Kwaderm
New study feedback: The changing landscape of cervical screening — What does the future hold for women living with HIV? – Paola Cicconi
Community reps feedback
Reflection and feedback of the meeting member updates
16.55 AOB
17.00 Meeting close

Presentations from this meeting

Health and wellbeing outcomes in PLWH with and without depression – Davide de Francesco
Increased physical activity levels amongst HIV positive individuals – Declan Duncan
National standards of HIV peer support – Silvia Petretti
The changing landscape of cervical screening – What does the future hold for women living with HIV? – Dr Paola Cicconi

Background reading

Specialist HIV Outpatient Physiotherapy Service
Chelsea and Westminster Hospital provides specialist rehabilitation services for people living with HIV. They offer inpatient Physiotherapy and Occupational therapy and outpatient Physiotherapy. HIV is now considered a long-term condition where people living with HIV taking treatments can have normal life expectancies, with good quality of life.  However people living longer with HIV may develop other health conditions because of HIV, treatments or ageing. For many people living with HIV, periods of good health may be interrupted by illness or disability.

Rehabilitation such as Physiotherapy and Occupational Therapy can help people living with HIV remain healthy, recover from illness or episodic disability, and return to an independent and active life at home, at work and in the community.

HIV and your quality of life (2016)
This i-Base guide now focuses as much on getting the best quality of life as it does on side effects. The online version includes additional material to the print version.

HIV, mental health & emotional wellbeing
This NAM booklet provides information on emotional wellbeing and mental health for people living with HIV. Emotional difficulties and problems with mental health can affect anybody (research suggests one in every four people in the UK will experience some sort of mental health problem at some point), but living with a long-term illness like HIV can mean that you are more likely to experience mental health problems. There are things you can do to look after your emotional health, and a lot of help available if you do experience problems. Treatment for depression, anxiety and many other mental health problems can be very effective.

Health & wellbeing when living with HIV
Avert’s article on health and wellbeing. Having HIV doesn’t have to stop you living a full and healthy life. With the right treatment and care, you can expect to live just as long as someone who doesn’t have HIV. There’s a lot you can do to take care of yourself and feel fitter, healthier and happier.

National Standards for HIV Peer Support :

Financial support

The UK-CAB receives unrestricted funding from some pharmaceutical companies towards the direct costs of holding four meetings each year. This funding supports the travel and accommodation costs for members to attend from outside London, plus the cost of catering.

The content, programme and agenda for meetings is decided by the UK-CAB steering group in consultation with the wider membership. Funding is unconnected to meeting content.

Companies that develop and market medicines have a responsibility to actively engage with advocacy organisations. HIV positive people and their advocates should also be able to ask manufacturers directly about the safety and efficacy of their products. We should be involved in their proposals for future research.

For a list of companies that support the UK-CAB please see the “about us” page.