UK Community Advisory Board (UK-CAB)

UK-CAB 69: Sex, sexuality and self image

Programme

09.30-09.40 Arrival, tea and refreshments
09:40-10:00 Welcome and introductions
UK-CAB updates
Company pre-meeting
10:00-11:30 Company meeting: Janssen 
11.30-11.45 Break
11.45-12.30 Feedback from IAS – Simon Collins
12.45-14.00 Lunch
14.00-15.30 Sex, sexuality and self-care: personal stories; Q&A
15.30-15.45 Break
15.45-17.00 Members Updates
– MRC CTU PPI – Roy Trevelion
– PRISM study poster – Roy Trevelion
Any other business & reflection
17.00 Meeting close

Slides and meeting report

Company meeting: Janssen – confidential
IAS feedback – Simon Collins
Medical Research Council (MRC) Clinical Trials Unit (CTU) Public and Patient Involvement (PPI)
PRISM study poster
Meeting report – confidential, available  to members only

Financial support

The UK-CAB receives unrestricted funding from some pharmaceutical companies towards the direct costs of holding four meetings each year.

This funding supports the travel and accommodation costs for members to attend from outside London, plus the cost of catering. The content, programme and agenda for meetings is decided by the UK-CAB steering group in consultation with the wider membership. Funding is unconnected to meeting content.

Companies that develop and market medicines have a responsibility to actively engage with advocacy organisations. HIV positive people and their advocates should also be able to ask manufacturers directly about the safety and efficacy of their products. We should be involved in their proposals for future research.