Clinical trials – a guide for CAB members (page 20)

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• Community Advisory Board members are often asked to be part of the research team while it is developing and writing the protocol for a study. CAB members represent people who will be asked to participate in the study, and speak for them when making recommendations to the team.
• CAB members may be asked to help educate their community about research in general, or about a specific research protocol. It’s important that education in the community includes informing the community of the rights of research participants, and the responsibilities of both participants and researchers.
• CAB members may also be asked to review the informed consent form as it is developed (written) for a specific research study. CAB members may help the research team ensure that the consent form is written in an understandable way using appropriate language for members of their community. While a research study is being conducted, CAB members may communicate with researchers regarding problems or questions that come up in their community regarding the protocol.
• CAB members may also communicate with researchers about the health care problems seen in their community. CAB members speak for their community in informing scientists about health care problems that exist in the community that need to be studied. Scientists should be responsive to the needs identified by the community when planning future research.